Fetal Alcohol Spectrum Disorders (FASD) and Neuro developmental Disorders
This page features a variety of resources for families raising and working with children, youth or young adults who have experienced prenatal exposure to alcohol or drugs. Several resources, noted with a (T) below, are particularly helpful for sharing background information with teachers and other adults who work with children and youth with FASD.
The ABCs of back to school with FASD
Informative PDF on the ABCs of Back to School with FASD from the North American Council on Adoptable Children.
Effective Strategies Checklist: Children and Youth with Developmental Disorders and Challenging Behaviors
Children and youth who have intellectual disabilities or developmental disorders are at elevated risk for co-occurring psychiatric or behavioral problems. These young people pose a serious challenge for administrators, program directors and clinicians, especially when they present with aggressive or disruptive behaviors. When appropriate community services have not been organized, these youth can be among the most difficult and costly to serve. Across the country, their families report relentless stress, partly because it is very difficult to obtain the help they need. This paper provides resources and strategies that have improved outcomes and lowered costs, while diminishing risk for institutional placements, referrals to juvenile justice and child welfare.
Fetal Alcohol Spectrum Disorder Educational Strategies handbook from Sanford School of Medicine
The educational strategies presented in this handbook are intended to be helpful to all teachers who work with students who may have a Fetal Alcohol Spectrum Disorder (FASD). If this is your first time teaching a student with an FASD, this guide should be extremely helpful. While many of the strategies are general and are appropriate to use with all students who may share some of the learning needs of students with an FASD, they should be especially helpful to use with students who have been diagnosed with an FASD, from Sanford School of Medicine, Univ of South Dakota.
Proof Alliance North Carolina
Proof Alliance NC strives to prevent alcohol-exposed pregnancies by providing training, education and resources to professionals who serve individuals of reproductive age, deliver prevention messaging and resources to individuals who can become pregnant, as well as resources for professionals who provide supports to families and individuals impacted by FASD.
Preventing Secondary Characteristics of FASD: What Does the Research Say? webinar
January 31, 2023Originally broadcast live on January 31, 2023, this webinar featured a replay of a FASD Collaborative webinar on Preventing Secondary Characteristics of FASD by Adrienne Bashista, Director, Families Affected by FASD (FAFASD). Ms. Bashista addressed questions from participants at the end of the webinar.
Presenter Adrienne Bashista can be reached at fasdfamilies@gmail.com.
Webinar recording
Interdisciplinary Diagnosis and Interventions for Fetal Alcohol Spectrum Disorders webinar
January 24, 2023Originally broadcast live on January 24, 2023, this webinar features Dr. Elizabeth Cleveland of the Central Arkansas University. Dr. Cleveland overviews FASD and in particular, the diagnosis of FAS and ND-PAE. She offers recommendations for meeting the needs of children, youth and young adults in home and school settings.
Webinar recording
Dr. Cleveland's presentation slides
Addressing Challenges Faced by Students with a FASD Diagnosis webinar
January 17, 2023Originally broadcast live on January 17, 2023, this Formed Families Forward-hosted webinar featured panelists:
Nate Sheets, Behavior Consultant and Parent Coach at Oregon Behavior Consultation, https://cognitivesupports.com/
Carson Kautz-Turnbull, 5th year graduate student at the University of Rochester, working with Dr. Christie Petrenko. ckautz@ur.rochester.edu Ms. Kautz-Turnbull shared this resource for families and educators: Families Moving Forward Connect project and related app: https://fmfconnect.com/
Kelly Henderson, PhD, Executive Director, Formed Families Forward
Additional scholarly resources suggested by Ms. Kautz-Turnbull are also provided here.
Recording of Panel webinar
Self care in Caregivers of Children with FASD
A Mobile Health Intervention for FASD Families Moving Forward Connect
Initial Feasbility of the Families Moving Forward Connect App
A meta analytic review of adaptive functioning in fetal alcohol spectrum disorders, and the effect of IQ, executive functioning, and age
Strengths and Positive Influences of Children with FASD
FASD United
FASD United, formerly National Organization on Fetal Alcohol Syndrome, NOFAS, works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities.
FASD in Schools webinar
January 27, 2022Delivered live on January 27, 2022, this webinar overviewed major educational provisions for serving students with FASD in schools. Presented by Dr. Kelly Henderson of FFF, the session also covered ways for building home/school collaborations and offered a variety of resources for educators and families.
Webinar recording
presentation slides
Changing our Approach blog from Barb Clark
Improving the Behavior of Children with FASD 2021 article by Hutton
FASD Educational Interventions webinar
January 20, 2022Hosted live by FFF on January 20, 2022, this webinar featured Dr. Molly Millians of Emory University reviewing evidence-based interventions for children and youth with prenatal alcohol exposure.
Webinar recording
Presentation slides
Handout with resources from Dr. Millians
Improving the Behavior of Children With Fetal Alcohol Spectrum Disorders article
From Teaching Exceptional Children journal, this article by Hutton (2021) offers strategies for addressing FASD in the classroom.
Article
Prenatal Alcohol and Other Drug Exposures in Child Welfare Study: Final Report
This September 2021 report from Children’s Bureau Administration for Children and Families U.S. Department of Health and Human Services, reports findings from the Prenatal Alcohol and Other Drug Exposures in Child Welfare (PAODE-CW) study. The primary objective of this study was to examine the current state of child welfare practice regarding identification of and service referrals for children with prenatal substance exposure with a strong focus on exposures to alcohol. This study focused on how child welfare agencies can obtain important information about FASD and other conditions when children come into contact with the system, and how they use this information to provide services to support affected children and strengthen their relationships with parents and/or caregivers.
Date from state and local child welfare agencies and from foster and adoptive parents are reported.
FASD Diagnosis webinar
January 13, 2022Delivered live on January 13, 2022, FFF hosted Dr. Renee Turchi for a webinar about diagnosis of conditions under the fetal alcohol spectrum disorders umbrella.
Webinar Recording
Slides from Dr. Turchi FASD Diagnosis
Turchi and colleagues article on FASD Integrated Care
Instilling Hope: A Brain Based Approach to Understanding FASDs and other Neurobehavioral Conditions webinar
January 06, 2022Presented live on January 6, 2022, this webinar features counselor and FASCETS Director Melissa Elligson covering foundational information about fetal alcohol spectrum disorders and other neurobehavioral conditions. Slides are available upon request from Melissa, melligson@gmail.com.
Recording of Instilling Hope webinar
Onward: The Formed Families Forward podcast, Epi. 2 FASD
The 2nd episode of Onward: The FFF Podcast is focused on Fetal Alcohol Spectrum Disorder, featuring father Joe Daum and FFF director Kelly Henderson.
Podcast, Episode 2
FASD Success Show podcast
The FASD Success Show is a podcast produced by Jeff Noble.
Four-year Follow-Up of a Randomized Controlled Trial of Choline for Neurodevelopment in Fetal Alcohol Spectrum Disorder
Summary of research article by Wozniak et al. on impact of choline supplementation on young children with FASD.
FASD Forever organization
Founded by author, speaker and FASD caregiver Jeff Noble, FASD Forever offers workshops, books and other resources for families impacted by FASD.
Northern Post Adoption Regional Consortium
Funded by Va Department of Social Services, the Northern Post Adoption Regional Consortium offers case management, crisis supports, training, and other services for post-adoptive families. It is a partnership between The Center for Adoption Support and Education (C.A.S.E.), enCircle, Children’s Home Society and NACAC to offer post adoption services and supports.
All families who have finalized adoptions of children ages birth through 18 years and reside in Virginia are eligible for services at no cost. This includes families that have adopted domestically, internationally and through foster care.
Consortium Flyer for families
Consortium Flyer for professionals
Website
FASD from a Trauma Lens webinar
Broadcast on February 11, 2020, this webinar features Barb Clark from NACAC.
Webinar recording
Slides from 2 11 20 webinar
Evidence-based Interventions for Children with FASD webinar
Originally recorded January 16, 2020, presented by Dr. Molly Millians of Emory University.
Webinar recording
Slides for 1 16 20 webinar
FASD Forever
This website features resources written by Jeff Noble, an FASD caregiver and others with FASD experiences. A free e-book, Making Sense of the Madness: An FASD Survival Guide, is available by signing up for the Newsletter.
Young Children who are Exposed Prenatally to Substances and Their Families
A collection of linked resources on young children prenatally exposed to substances, from the Early Childhood Technical Assistance Center (ECTA) and the IDEA Infant & Toddler Coordinators Association (ITCA).