This page features a variety of resources for families raising and working with children, youth or young adults who have experienced prenatal exposure to alcohol or drugs. Several resources, noted with a (T) below, are particularly helpful for sharing background information with teachers and other adults who work with children and youth with FASD.
Informative PDF on the ABCs of Back to School with FASD from the North American Council on Adoptable Children.
Children and youth who have intellectual disabilities or developmental disorders are at elevated risk for co-occurring psychiatric or behavioral problems. These young people pose a serious challenge for administrators, program directors and clinicians, especially when they present with aggressive or disruptive behaviors. When appropriate community services have not been organized, these youth can be among the most difficult and costly to serve. Across the country, their families report relentless stress, partly because it is very difficult to obtain the help they need. This paper provides resources and strategies that have improved outcomes and lowered costs, while diminishing risk for institutional placements, referrals to juvenile justice and child welfare.
The educational strategies presented in this handbook are intended to be helpful to all teachers who work with students who may have a Fetal Alcohol Spectrum Disorder (FASD). If this is your first time teaching a student with an FASD, this guide should be extremely helpful. While many of the strategies are general and are appropriate to use with all students who may share some of the learning needs of students with an FASD, they should be especially helpful to use with students who have been diagnosed with an FASD, from Sanford School of Medicine, Univ of South Dakota.
From nonprofit Creating A Family, this tip sheet offers 7 strategies for parenting children and youth with fetal alcohol spectrum disorders.
Parenting Tips fact sheet
This website from the UK Department of Health and Social Care is designed for children, youth and young adults who have had prenatal exposure to alcohol, and may be diagnosed with Fetal Alcohol Spectrum Disorders (FASD).
Interactive tools and resources help youth, families and connected adults learn more about the condition and how to cope.
Me and My FASD website
A website of the Provincial Outreach Program for Fetal Alcohol Spectrum Disorder (POPFASD), funded by the British Columbia Ministry of Education shares current research, ideas, strategies, training and resources in order to build capacity in schools for students with FASD and their teachers.
POPFASD website
This Fact Sheet, produced by GMU Intern Charlotte Walmsley in Spring 2023, provides suggestions based on lived experiences of parents and caregivers raising children, youth and young adults with FASD. Links to additional resources are included.
Proof Alliance NC strives to prevent alcohol-exposed pregnancies by providing training, education and resources to professionals who serve individuals of reproductive age, deliver prevention messaging and resources to individuals who can become pregnant, as well as resources for professionals who provide supports to families and individuals impacted by FASD.
Originally broadcast live on January 31, 2023, this webinar featured a replay of a FASD Collaborative webinar on Preventing Secondary Characteristics of FASD by Adrienne Bashista, Director, Families Affected by FASD (FAFASD). Ms. Bashista addressed questions from participants at the end of the webinar.
Presenter Adrienne Bashista can be reached at fasdfamilies@gmail.com.
Webinar recording
Originally broadcast live on January 24, 2023, this webinar features Dr. Elizabeth Cleveland of the Central Arkansas University. Dr. Cleveland overviews FASD and in particular, the diagnosis of FAS and ND-PAE. She offers recommendations for meeting the needs of children, youth and young adults in home and school settings.
Webinar recording
Dr. Cleveland's presentation slides
Originally broadcast live on January 17, 2023, this Formed Families Forward-hosted webinar featured panelists:
Nate Sheets, Behavior Consultant and Parent Coach at Oregon Behavior Consultation, https://cognitivesupports.com/
Carson Kautz-Turnbull, 5th year graduate student at the University of Rochester, working with Dr. Christie Petrenko. ckautz@ur.rochester.edu Ms. Kautz-Turnbull shared this resource for families and educators: Families Moving Forward Connect project and related app: https://fmfconnect.com/
Kelly Henderson, PhD, Executive Director, Formed Families Forward
Additional scholarly resources suggested by Ms. Kautz-Turnbull are also provided here.
Recording of Panel webinar
Self care in Caregivers of Children with FASD
A Mobile Health Intervention for FASD Families Moving Forward Connect
Initial Feasbility of the Families Moving Forward Connect App
A meta analytic review of adaptive functioning in fetal alcohol spectrum disorders, and the effect of IQ, executive functioning, and age
Strengths and Positive Influences of Children with FASD
FASD United, formerly National Organization on Fetal Alcohol Syndrome, NOFAS, works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities.
Delivered live on January 27, 2022, this webinar overviewed major educational provisions for serving students with FASD in schools. Presented by Dr. Kelly Henderson of FFF, the session also covered ways for building home/school collaborations and offered a variety of resources for educators and families.
Webinar recording
presentation slides
Changing our Approach blog from Barb Clark
Improving the Behavior of Children with FASD 2021 article by Hutton
Hosted live by FFF on January 20, 2022, this webinar featured Dr. Molly Millians of Emory University reviewing evidence-based interventions for children and youth with prenatal alcohol exposure.
Webinar recording
Presentation slides
Handout with resources from Dr. Millians
From Teaching Exceptional Children journal, this article by Hutton (2021) offers strategies for addressing FASD in the classroom.
Article
This September 2021 report from Children’s Bureau Administration for Children and Families U.S. Department of Health and Human Services, reports findings from the Prenatal Alcohol and Other Drug Exposures in Child Welfare (PAODE-CW) study. The primary objective of this study was to examine the current state of child welfare practice regarding identification of and service referrals for children with prenatal substance exposure with a strong focus on exposures to alcohol. This study focused on how child welfare agencies can obtain important information about FASD and other conditions when children come into contact with the system, and how they use this information to provide services to support affected children and strengthen their relationships with parents and/or caregivers.
Date from state and local child welfare agencies and from foster and adoptive parents are reported.
Delivered live on January 13, 2022, FFF hosted Dr. Renee Turchi for a webinar about diagnosis of conditions under the fetal alcohol spectrum disorders umbrella.
Webinar Recording
Slides from Dr. Turchi FASD Diagnosis
Turchi and colleagues article on FASD Integrated Care
Presented live on January 6, 2022, this webinar features counselor and FASCETS Director Melissa Elligson covering foundational information about fetal alcohol spectrum disorders and other neurobehavioral conditions. Slides are available upon request from Melissa, melligson@gmail.com.
Recording of Instilling Hope webinar
The 2nd episode of Onward: The FFF Podcast is focused on Fetal Alcohol Spectrum Disorder, featuring father Joe Daum and FFF director Kelly Henderson.
Podcast, Episode 2
The FASD Success Show is a podcast produced by Jeff Noble.
Summary of research article by Wozniak et al. on impact of choline supplementation on young children with FASD.
Founded by author, speaker and FASD caregiver Jeff Noble, FASD Forever offers workshops, books and other resources for families impacted by FASD.
Funded by Va Department of Social Services, the Northern Post Adoption Regional Consortium offers case management, crisis supports, training, and other services for post-adoptive families. It is a partnership between The Center for Adoption Support and Education (C.A.S.E.), enCircle, Children’s Home Society and NACAC to offer post adoption services and supports.
All families who have finalized adoptions of children ages birth through 18 years and reside in Virginia are eligible for services at no cost. This includes families that have adopted domestically, internationally and through foster care.
Consortium Flyer for families
Consortium Flyer for professionals
Website