Research

Preventing Secondary Characteristics of FASD: What Does the Research Say? webinar
January 31, 2023

Originally broadcast live on January 31, 2023, this webinar featured a replay of a FASD Collaborative webinar on Preventing Secondary Characteristics of FASD by Adrienne Bashista, Director, Families Affected by FASD (FAFASD). Ms. Bashista addressed questions from participants at the end of the webinar.

Presenter Adrienne Bashista can be reached at fasdfamilies@gmail.com.

  • Video, Preventing Secondary Characteristics of FASD: What Does the Research Say? webinar

    Webinar recording


Interdisciplinary Diagnosis and Interventions for Fetal Alcohol Spectrum Disorders webinar
January 24, 2023

Originally broadcast live on January 24, 2023, this webinar features Dr. Elizabeth Cleveland of the Central Arkansas University. Dr. Cleveland overviews FASD and in particular, the  diagnosis of FAS and ND-PAE. She offers recommendations for meeting the needs of children, youth and young adults in home and school settings.

  • Video, Interdisciplinary Diagnosis and Interventions for Fetal Alcohol Spectrum Disorders webinar

    Webinar recording

  • PDF, Interdisciplinary Diagnosis and Interventions for Fetal Alcohol Spectrum Disorders webinar

    Dr. Cleveland's presentation slides


Addressing Challenges Faced by Students with a FASD Diagnosis webinar
January 17, 2023

Originally broadcast live on January 17, 2023, this Formed Families Forward-hosted webinar featured panelists:

Nate Sheets, Behavior Consultant and Parent Coach at Oregon Behavior Consultation, https://cognitivesupports.com/

Carson Kautz-Turnbull, 5th year graduate student at the University of Rochester, working with Dr. Christie Petrenko. ckautz@ur.rochester.edu Ms. Kautz-Turnbull shared this resource for families and educators: Families Moving Forward Connect project and related app: https://fmfconnect.com/

Kelly Henderson, PhD, Executive Director, Formed Families Forward

Additional scholarly resources suggested by Ms. Kautz-Turnbull are also provided here.

  • Video, Addressing Challenges Faced by Students with a FASD Diagnosis webinar

    Recording of Panel webinar

  • PDF, Addressing Challenges Faced by Students with a FASD Diagnosis webinar

    Self care in Caregivers of Children with FASD

  • PDF, Addressing Challenges Faced by Students with a FASD Diagnosis webinar

    A Mobile Health Intervention for FASD Families Moving Forward Connect

  • PDF, Addressing Challenges Faced by Students with a FASD Diagnosis webinar

    Initial Feasbility of the Families Moving Forward Connect App

  • PDF, Addressing Challenges Faced by Students with a FASD Diagnosis webinar

    A­ meta analytic­ review­ of ­adaptive ­functioning ­in ­fetal­ alcohol­ spectrum­ disorders,­ and ­the ­effect of­ IQ, ­executive­ functioning, and ­age

  • PDF, Addressing Challenges Faced by Students with a FASD Diagnosis webinar

    Strengths and Positive Influences of Children with FASD


FASD Educational Interventions webinar
January 20, 2022

Hosted live by FFF on January 20, 2022, this webinar featured Dr. Molly Millians of Emory University reviewing evidence-based interventions for children and youth with prenatal alcohol exposure.

  • Webinar, FASD Educational Interventions webinar

    Webinar recording

  • PDF, FASD Educational Interventions webinar

    Presentation slides

  • PDF, FASD Educational Interventions webinar

    Handout with resources from Dr. Millians


Prenatal Alcohol and Other Drug Exposures in Child Welfare Study: Final Report

This September 2021 report from Children’s Bureau Administration for Children and Families U.S. Department of Health and Human Services, reports findings from the Prenatal Alcohol and Other Drug Exposures in Child Welfare (PAODE-CW) study. The primary objective of this study was to examine the current state of child welfare practice regarding identification of and service referrals for children with prenatal substance exposure with a strong focus on exposures to alcohol. This study focused on how child welfare agencies can obtain important information about FASD and other conditions when children come into contact with the system, and how they use this information to provide services to support affected children and strengthen their relationships with parents and/or caregivers.
Date from state and local child welfare agencies and from foster and adoptive parents are reported.

  • Report, Prenatal Alcohol and Other Drug Exposures in Child Welfare Study: Final Report


Four-year Follow-Up of a Randomized Controlled Trial of Choline for Neurodevelopment in Fetal Alcohol Spectrum Disorder

Summary of research article by Wozniak et al. on impact of choline supplementation on young children with FASD.

  • Website, Four-year Follow-Up of a Randomized Controlled Trial of Choline for Neurodevelopment in Fetal Alcohol Spectrum Disorder


Evidence-based Interventions for Children with FASD webinar

Originally recorded January 16, 2020, presented by Dr. Molly Millians of Emory University.

  • Webinar, Evidence-based Interventions for Children with FASD webinar

    Webinar recording

  • PPT, Evidence-based Interventions for Children with FASD webinar

    Slides for 1 16 20 webinar


Young Children who are Exposed Prenatally to Substances and Their Families

A collection of linked resources on young children prenatally exposed to substances, from the Early Childhood Technical Assistance Center (ECTA) and the IDEA Infant & Toddler Coordinators Association (ITCA).

  • Website, Young Children who are Exposed Prenatally to Substances and Their Families


FASD Toolkit from American Academy of Pediatrics

The Fetal Alcohol Spectrum Disorders (FASD) Toolkit was developed to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions. From the American Academy of Pediatrics in collaboration with the Centers for Disease Control.

  • Website, FASD Toolkit from American Academy of Pediatrics


Behavioral Interventions for Children and Adolescents with Fetal Alcohol Spectrum Disorders article

This article from the Alcohol Research & Health journal, focuses on research-based behavioral interventions for children and youth with FASD.

  • Document, Behavioral Interventions for Children and Adolescents with Fetal Alcohol Spectrum Disorders article


Collection of FASD resources from Emory University

Fact sheets and other resources on FASD and prenatal drug exposure.

  • Website, Collection of FASD resources from Emory University


WEBINAR- Improved Outcomes through Screening and Diagnosis of ND-PAE in Patients with FASD

Dr. Susan Rich presented a webinar as part of our FASD series. Find her slides and additional handouts here, as well as a recording of the  webinar. Please note that video images start about 6 minutes into the recording and due to errors in the file, the audio of Dr. Rich discontinues @ minute 30. We have worked with GoToWebinar extensively to repair the audio file and unfortunately there was a permanent loss of audio. We are assured this issue will not reoccur in future webinars. Our apologies.

  • PDF, WEBINAR- Improved Outcomes through Screening and Diagnosis of ND-PAE in Patients with FASD

    Slides from Dr. Rich's webinar

  • PDF, WEBINAR- Improved Outcomes through Screening and Diagnosis of ND-PAE in Patients with FASD

    ND PAE Diagnostic Tool from Dr. Rich Jan 2019 webinar

  • PDF, WEBINAR- Improved Outcomes through Screening and Diagnosis of ND-PAE in Patients with FASD

    ND PAE diagnostic tool Explanation Dr. Rich Jan 2019 webinar

  • Webinar, WEBINAR- Improved Outcomes through Screening and Diagnosis of ND-PAE in Patients with FASD

    Recording of Dr. Rich's 1/28/19 webinar (video begins @ minute 6)


Neurobehavioral Disorder Associated With Prenatal Alcohol Exposure

This Special Article outlines clinical implications and guidelines for pediatric medical home clinicians to identify, diagnose, and refer children regarding neurobehavioral disorder associated with prenatal exposure. Emphasis is given to reported or observable behaviors that can be identified as part of care in pediatric medical homes, differential diagnosis, and potential comorbidities. In addition, brief guidance is provided on the management of affected children in the pediatric medical home. Finally, suggestions are given for obtaining prenatal history of in utero exposure to alcohol for the pediatric patient.

  • PDF, Neurobehavioral Disorder Associated With Prenatal Alcohol Exposure

    Article, PDF

  • Website, Neurobehavioral Disorder Associated With Prenatal Alcohol Exposure

    Article online


Improving Awareness And Treatment Of Children With Fetal Alcohol Spectrum Disorders And Co-Occurring Psychiatric Disorders

The purposes of this paper are to increase understanding of the connection between serious emotional disturbances and fetal alcohol spectrum disorders (FASD) and to raise awareness of the unique diagnostic challenges and treatment needs of children who have FASD and co-occurring psychiatric disorders. (The term co-occurring disorder describes the presence of a psychiatric disorder and a disorder such as FASD that is related to substance use.) Robust studies of evidence-based interventions for this population are lacking. The main goal of this paper is to highlight both the lack of such studies and the pressing need for specialized interventions that can help address the challenges faced by children with psychiatric disorders within the FASD population.

The Improving Awareness and Treatment of Children with Fetal Alcohol Spectrum Disorders and Co-Occurring Psychiatric Disorders report is provided by Disability Service Center, JBS International

  • Report, Improving Awareness And Treatment Of Children With Fetal Alcohol Spectrum Disorders And  Co-Occurring Psychiatric Disorders


Kids’ Quest on FASD

Fetal alcohol spectrum disorders (FASDs) are a group of conditions that can occur in a person who was exposed to alcohol before birth. These effects can include physical problems and problems with behavior and learning. Often, a person with an FASD has a mix of these problems.

Kids’ Quest on FASD from the US Centers for Disease Control and Prevention has information with what you should know, quick facts and other resources.

  • Website, Kids’ Quest on FASD


North Dakota Fetal Alcohol Syndrome Center online clinic

Welcome to the online clinic of Dr. Larry Burd, Director of the North Dakota Fetal Alcohol Syndrome Center and Professor of Pediatrics at the University of North Dakota School of Medicine and Health Sciences. Dr. Burd’s research encompasses areas such as Fetal Alcohol Syndrome, Autism, Sudden Infant Death Syndrome and Smoking Prevention in Schools.

North Dakota Fetal Alcohol Syndrome Center also provides an online clinic with various resources.

  • Website, North Dakota Fetal Alcohol Syndrome Center online clinic

    North Dakota School of Medicine & Health Sciences

  • Website, North Dakota Fetal Alcohol Syndrome Center online clinic

    Online clinic


IDEA Intervention Brief on FASD 

IDEA Intervention Briefs on FASD and other neurodevelopmental conditions from the US Office of Special Education and Rehabilitative Services.

  • PDF, IDEA Intervention Brief on FASD 

    Fetal Alcohol Spectrum Disorders

  • PDF, IDEA Intervention Brief on FASD 

    Lead Exposure

  • Document, IDEA Intervention Brief on FASD 

    Opioids

  • Website, IDEA Intervention Brief on FASD 

    IDEAs that Work Intervention Brief webpage