From FASD Success (https://www.fasdsuccess.com/), this fillable packet provides families an opportunity to share unique and critical FASD-related information about their child or youth with teachers and staff.
Find more about this guide at https://www.fasdsuccess.com/understandingmefasdguide.
This fillable “All About Me” template from FFF gives families and students a simple way to share critical information with teachers, staff and others who can benefit from the essential key facts about a child or youth.
This was shared as part of our “Just So You Know… Strategies for Nontraditional Families to Share Their Information with Schools” training. It can be used by any family or student.
Fill in the blanks
Instructions
Sample completed All About Me
Children and youth who have intellectual disabilities or developmental disorders are at elevated risk for co-occurring psychiatric or behavioral problems. These young people pose a serious challenge for administrators, program directors and clinicians, especially when they present with aggressive or disruptive behaviors. When appropriate community services have not been organized, these youth can be among the most difficult and costly to serve. Across the country, their families report relentless stress, partly because it is very difficult to obtain the help they need. This paper provides resources and strategies that have improved outcomes and lowered costs, while diminishing risk for institutional placements, referrals to juvenile justice and child welfare.
Presented live on Wednesday, January 24, 2024 by Shannon Iacobacci from Embracing the Brain, this session offers tips on how to advocate for a child or youth with a fetal alcohol spectrum disorder in schools. Shannon reviews special education processes and provisions, and gives specific suggestions for IEPs and 504 plans.
Webinar presentation slides
Webinar recording
Dear Teacher template from Shannon Iacobacci
This webinar was originally broadcast live on February 7, 2024. Presented by Lucy Beadnell of The Arc of Northern Virginia, this webinar offered historical perspectives on interactions between law enforcement and persons with developmental disabilities. Practical recommendations for families to prevent arrests were shared.
Presentation slides
Recording of webinar
From nonprofit Creating A Family, this tip sheet offers 7 strategies for parenting children and youth with fetal alcohol spectrum disorders.
Parenting Tips fact sheet
This website from the UK Department of Health and Social Care is designed for children, youth and young adults who have had prenatal exposure to alcohol, and may be diagnosed with Fetal Alcohol Spectrum Disorders (FASD).
Interactive tools and resources help youth, families and connected adults learn more about the condition and how to cope.
Me and My FASD website
This Fact Sheet, produced by GMU Intern Charlotte Walmsley in Spring 2023, provides suggestions based on lived experiences of parents and caregivers raising children, youth and young adults with FASD. Links to additional resources are included.
Originally broadcast live on January 31, 2023, this webinar featured a replay of a FASD Collaborative webinar on Preventing Secondary Characteristics of FASD by Adrienne Bashista, Director, Families Affected by FASD (FAFASD). Ms. Bashista addressed questions from participants at the end of the webinar.
Presenter Adrienne Bashista can be reached at fasdfamilies@gmail.com.
Webinar recording
Originally broadcast live on January 24, 2023, this webinar features Dr. Elizabeth Cleveland of the Central Arkansas University. Dr. Cleveland overviews FASD and in particular, the diagnosis of FAS and ND-PAE. She offers recommendations for meeting the needs of children, youth and young adults in home and school settings.
Webinar recording
Dr. Cleveland's presentation slides
Originally broadcast live on January 17, 2023, this Formed Families Forward-hosted webinar featured panelists:
Nate Sheets, Behavior Consultant and Parent Coach at Oregon Behavior Consultation, https://cognitivesupports.com/
Carson Kautz-Turnbull, 5th year graduate student at the University of Rochester, working with Dr. Christie Petrenko. ckautz@ur.rochester.edu Ms. Kautz-Turnbull shared this resource for families and educators: Families Moving Forward Connect project and related app: https://fmfconnect.com/
Kelly Henderson, PhD, Executive Director, Formed Families Forward
Additional scholarly resources suggested by Ms. Kautz-Turnbull are also provided here.
Recording of Panel webinar
Self care in Caregivers of Children with FASD
A Mobile Health Intervention for FASD Families Moving Forward Connect
Initial Feasbility of the Families Moving Forward Connect App
A meta analytic review of adaptive functioning in fetal alcohol spectrum disorders, and the effect of IQ, executive functioning, and age
Strengths and Positive Influences of Children with FASD
Delivered live on January 27, 2022, this webinar overviewed major educational provisions for serving students with FASD in schools. Presented by Dr. Kelly Henderson of FFF, the session also covered ways for building home/school collaborations and offered a variety of resources for educators and families.
Webinar recording
presentation slides
Changing our Approach blog from Barb Clark
Improving the Behavior of Children with FASD 2021 article by Hutton
Hosted live by FFF on January 20, 2022, this webinar featured Dr. Molly Millians of Emory University reviewing evidence-based interventions for children and youth with prenatal alcohol exposure.
Webinar recording
Presentation slides
Handout with resources from Dr. Millians
Presented live on January 6, 2022, this webinar features counselor and FASCETS Director Melissa Elligson covering foundational information about fetal alcohol spectrum disorders and other neurobehavioral conditions. Slides are available upon request from Melissa, melligson@gmail.com.
Recording of Instilling Hope webinar
Funded by Va Department of Social Services, the Northern Post Adoption Regional Consortium offers case management, crisis supports, training, and other services for post-adoptive families. It is a partnership between The Center for Adoption Support and Education (C.A.S.E.), enCircle, Children’s Home Society and NACAC to offer post adoption services and supports.
All families who have finalized adoptions of children ages birth through 18 years and reside in Virginia are eligible for services at no cost. This includes families that have adopted domestically, internationally and through foster care.
Consortium Flyer for families
Consortium Flyer for professionals
Website
Broadcast on February 11, 2020, this webinar features Barb Clark from NACAC.
Webinar recording
Slides from 2 11 20 webinar
Originally recorded January 16, 2020, presented by Dr. Molly Millians of Emory University.
Webinar recording
Slides for 1 16 20 webinar
A collection of linked resources on young children prenatally exposed to substances, from the Early Childhood Technical Assistance Center (ECTA) and the IDEA Infant & Toddler Coordinators Association (ITCA).
The Fetal Alcohol Spectrum Disorders (FASD) Toolkit was developed to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions. From the American Academy of Pediatrics in collaboration with the Centers for Disease Control.
This webinar on February 7, 2019 by FFF Director Kelly Henderson focused on avenues for securing education supports for children and youth with FASD and strategies and resources for families to share with school staff.
Recording of Webinar
Slides from webinar
This article from the Alcohol Research & Health journal, focuses on research-based behavioral interventions for children and youth with FASD.
Series of 9 video episodes from Childbirth Media Center.
Students Like Me is a pathbreaking video guide for educators teaching children with Fetal Alcohol Syndrome. Over the past few years, practical research has been revealing more about the nature of learning challenges faced by children with alcohol-related birth defects. As a result, strategies are emerging to help children in both mainstream and special education classrooms. Students Like Me gives elementary and special educators a clear understanding of what Fetal Alcohol Syndrome is, how it affects childrens learning and behavior, and what can be done to modify classroom environments and teaching methods to allow children with FAS to learn.
Students Like Me video training series
A recording of a January 16, 2019 FFF webinar by Barbara Clark of the North American Council on Adoptable Children (NACAC).
Practical Strategies for Supporting A Loved One with FASD
Practical Strategies for Supporting a Loved One with FASD Slides